Recent Posts

  • Photo Friday

    Photo Friday – Pumpkin Patch 2014 On Sunday we made our annual … More

    Photo Friday
  • Will’s IEP

    Will’s evaluation with his school has been completed and he has been … More

    Will’s IEP
  • Photo Friday

    Photo Friday – Sounders Hair Last Friday, Jim and Jack took our … More

    Photo Friday
  • Photo Friday

    Photo Friday – Sarah’s 40th Birthday My 40th birthday was … More

    Photo Friday
  • Photo Friday

    Photo Friday – Bros Chatting I love watch the two boys walk to … More

    Photo Friday

GI Content

Both boys suffered from a variety of GI issues including reflux, milk protein intolerance, tube feeding and swallow issues. The following topics are covered here:

Reflux or GERD
Milk protein intolerance
Feeding tubes
Feeding program

Vision Content

The boys were both diagnosed with Ocular Albinism, a condition that impacts their visual acuity. Will’s vision is much more affected than Jack’s. Some of the topics covered include:
Ocular Albinism
How the eye works
Genetics
Nystagmus
Astigmastism

About This Blog

The Will to See chronicles the balancing act that is my life -- raising two boys with vision and GI issues while building advocacy and a voice for these conditions.

Instagram

 Supporting our @soundersfc while they win the #SupportersShield and the best MLS record this season with my own double goal scorer today. #JackWheels #twtsproject365  Halloween costume prep. #twtsproject365
 Friday night at Yocums #Growlfie #twtsproject365  Peeling apples for Grandma's apple cake recipe. #twtsproject365

About the Boys

Jack is a thriving 3rd grader who spent most of his first 2 1/2 years of life being tube fed as a result of GI complications. He loves riding his bike, being a cub scout, reading books and playing soccer and basketball.

 

Will is a busy five year old who keeps us on our toes despite his vision impairment, ocular albinism. His favorite activities are riding his bike, playing cars, playing with his brother and charming everyone he meets.