Recent Posts

  • Photo Friday

    Photo Friday – Playing in the Leaves Last weekend the boys and … More

    Photo Friday
  • Islay and the Recorder

    In fourth grade the kids learn to play the recorder. Jack brought his … More

    Islay and the Recorder
  • Photo Friday

    Photo Friday – Jack scoring a goal Jack scored two goals in his … More

    Photo Friday
  • Photo Friday

    Photo Friday – Halloween 2014 Halloween this year was full of … More

    Photo Friday
  • Ode to Jack

    This is Jack’s star week at school. One of the things we were asked … More

    Ode to Jack

GI Content

Both boys suffered from a variety of GI issues including reflux, milk protein intolerance, tube feeding and swallow issues. The following topics are covered here:

Reflux or GERD
Milk protein intolerance
Feeding tubes
Feeding program

Vision Content

The boys were both diagnosed with Ocular Albinism, a condition that impacts their visual acuity. Will’s vision is much more affected than Jack’s. Some of the topics covered include:
Ocular Albinism
How the eye works
Genetics
Nystagmus
Astigmastism

About This Blog

The Will to See chronicles the balancing act that is my life -- raising two boys with vision and GI issues while building advocacy and a voice for these conditions.

Instagram

 Testing holiday cocktails. #Yum  Guess who won a turkey at the Thunderbirds game. #TurkeyShoot #Hockey #twtsproject365
 Sleepy dog.  Our Supergirl. #Halloween #DogCostume #twtsproject365

About the Boys

Jack is a thriving 3rd grader who spent most of his first 2 1/2 years of life being tube fed as a result of GI complications. He loves riding his bike, being a cub scout, reading books and playing soccer and basketball.

 

Will is a busy five year old who keeps us on our toes despite his vision impairment, ocular albinism. His favorite activities are riding his bike, playing cars, playing with his brother and charming everyone he meets.