Recent Posts

  • Photo Friday

    Photo Friday – Climbing at the Park During the boys week off … More

    Photo Friday
  • Family Journal

    I wrote a few weeks ago about attending a talk by Penny Kittle about … More

    Family Journal
  • Photo Friday

    Photo Friday – President’s Day Hike Since we can’t ski this … More

    Photo Friday
  • Photo Friday

    Photo Friday – Jack’s Basket Jack’s basketball season is … More

    Photo Friday
  • Photo Friday

    Photo Friday – Super Blue Friday Today is Super Blue Friday … More

    Photo Friday

GI Content

Both boys suffered from a variety of GI issues including reflux, milk protein intolerance, tube feeding and swallow issues. The following topics are covered here:

Reflux or GERD
Milk protein intolerance
Feeding tubes
Feeding program

Vision Content

The boys were both diagnosed with Ocular Albinism, a condition that impacts their visual acuity. Will’s vision is much more affected than Jack’s. Some of the topics covered include:
Ocular Albinism
How the eye works
Genetics
Nystagmus
Astigmastism

About This Blog

The Will to See chronicles the balancing act that is my life -- raising two boys with vision and GI issues while building advocacy and a voice for these conditions.

Instagram

 George Washington came home today instead of Will.  All dressed and ready to go. Love my new @stitchfix cardigan.
 Taking apart old computer parts for robot art project. Love my helpers!  A little basketball at the park on a sunny vacation day. #IsItReallyStillWinter

About the Boys

Jack is a thriving 3rd grader who spent most of his first 2 1/2 years of life being tube fed as a result of GI complications. He loves riding his bike, being a cub scout, reading books and playing soccer and basketball.

 

Will is a busy five year old who keeps us on our toes despite his vision impairment, ocular albinism. His favorite activities are riding his bike, playing cars, playing with his brother and charming everyone he meets.