Recent Posts
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Blendarized Food
When Jack was about 15 months old we decided to start him on a … More
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Photo Friday
Photo Friday - Working at Starbucks This morning Will and I are … More
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Facebook Tips
When I worked on the Intro to Facebook presentation I found a few … More
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Mother’s Day Wordle
One of my Mother’s Day presents from Jack was a great Wordle sign of … More
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Photo Friday
Photo Friday – Mother’s Day Brunch Thursday was Mother’s Day … More
GI Content
Both boys suffered from a variety of GI issues including reflux, milk protein intolerance, tube feeding and swallow issues. The following topics are covered here:
Reflux or GERDMilk protein intolerance
Feeding tubes
Feeding program
Vision Content
The boys were both diagnosed with Ocular Albinism, a condition that impacts their visual acuity. Will’s vision is much more affected than Jack’s. Some of the topics covered include:
Ocular Albinism
How the eye works
Genetics
Nystagmus
Astigmastism
Ocular Albinism
How the eye works
Genetics
Nystagmus
Astigmastism
About This Blog
The Will to See chronicles the balancing act that is my life -- raising two boys with vision and GI issues while building advocacy and a voice for these conditions. Read more About the Boys
Jack is a thriving 2nd grader who spent most of his first 2 1/2 years of life being tube fed as a result of GI complications. He loves riding his bike, being a cub scout, reading books and playing soccer and basketball.
Will is a busy four year old who keeps us on our toes despite his vision impairment, ocular albinism. His favorite activities are riding his bike, playing cars, playing with his brother and charming everyone he meets.










