Recent Posts

  • Photo Friday

    Photo Friday – Will’s Friday Night Lights Will is playing … More

    Photo Friday
  • Photo Friday

    Photo Friday – 1st Day of School This week was the first days of … More

    Photo Friday
  • A New Chapter

    A new chapter in our lives began today as we watched Will climb on to … More

    A New Chapter
  • Photo Friday

    Photo Friday – Haircuts The boys got their back to school … More

    Photo Friday
  • Last Days of Summer

    With one week left until school starts we are trying to enjoy the last … More

    Last Days of Summer

GI Content

Both boys suffered from a variety of GI issues including reflux, milk protein intolerance, tube feeding and swallow issues. The following topics are covered here:

Reflux or GERD
Milk protein intolerance
Feeding tubes
Feeding program

Vision Content

The boys were both diagnosed with Ocular Albinism, a condition that impacts their visual acuity. Will’s vision is much more affected than Jack’s. Some of the topics covered include:
Ocular Albinism
How the eye works
Genetics
Nystagmus
Astigmastism

About This Blog

The Will to See chronicles the balancing act that is my life -- raising two boys with vision and GI issues while building advocacy and a voice for these conditions.

Instagram

 Showing the cousins the bus stop. #CharkisAreHere #twtsproject365  Waiting for the bride and groom. #ericandkati2014 #CharkisAreHere
 Sisters and brothers #EricandKati2014 #twtproject365  Backyard fire. #CharkisAreHere #twtsproject365

About the Boys

Jack is a thriving 3rd grader who spent most of his first 2 1/2 years of life being tube fed as a result of GI complications. He loves riding his bike, being a cub scout, reading books and playing soccer and basketball.

 

Will is a busy five year old who keeps us on our toes despite his vision impairment, ocular albinism. His favorite activities are riding his bike, playing cars, playing with his brother and charming everyone he meets.