I should probably start at the beginning of the story to just give you some background. Jackson (who is now 4 ½ years old) started showing signs of feeding issues within 10 days of birth. We began by putting him on “hypoallergenic” formulas, while we ran some tests. During that time we also discovered during an upper GI procedure that he had “severe reflux.” This started months of switching formulas, increasing and changing medicines, many trips to Children’s Hospital for tests only to end up putting in a NG feeding tube when he was 4 ½ months old. We replaced the NG tube with a G-tube (surgically placed into is tummy) when he was 11 ½ months old.
The good part of his story is that he is now eating normally and probably better than a lot of kids his age and has been for 2 years. He participated in a 2 week intensive feeding program through Children’s Hospital when he is 2 ½ years old and was very successful. I will write more about his story later, but that is Jack in a nutshell.
Now on to Will… William was born March 18, 2009. Within 4 days he should the same signs of a milk protein intolerance as Jack, so we put him on the only formula that ended up working for Jack, Neocate (a prescription only formula that is very expensive, but works.) That helped the crying at night and got rid of the mucous in his poops. Two weeks later he started to cry during the feedings, showing reflux symptoms, so we put him on Prevacid. A week later we added Zantac at night to help him settle down. After an increase in his dose he has been humming along, gaining weight great until recently. He never has been easy to feed, but now he is crying during his feedings again and we are fearful that this is going to put us on another feeding aversion path.
It is such a helpless feeling to look at your baby crying while you are trying to feed them and not know how to help. It brings back all of the feelings I had with the months of fighting with Jack to get him to eat. Will may have not been easy to feed, but he would eat. I am just so fearful that he will decide that it hurts to much and stop eating just like his brother. All I want to do is help him.